I totally forgot to update on our night last night. Thankfully he slept through the night and was asleep by 11pm, which is really good for him.
This morning the swelling was down and now it is just bruised. Still a little itchy, but not too bad.
Tuesday, June 30, 2009
and all is right with the world
milk, no milk, milk, no milk
So as I stated in a couple of posts, Saturday was super milk infestation day (I think I will now forever refer to the consumption of milk by Boy as an "infestation") and Sunday we paid the price. Yesterday was a no milk day and we had a great day. This morning was a great morning also.
Could it really be that the elimination of milk products (casein specifically) produces such a dramatic affect in behavior?
From what I have read, here are the supposed reasons:
When you consume casein (in milk products), your body breaks it down into by products that some believe are leaked through the intestines and into the blood -- studies show that autistic children are more likely to have gastrointestinal issues including leakage. (We certainly have gastrointestinal issues with boy!) There have been studies done that show that these by products are more commonly found in the urine of autistic children versus non-autistic children. "Casein has been documented to break down to produce the peptide casomorphin, an opioid that appears to act primarily as a histamine releaser." -- wikipedia.
So basically - children consume milk, aren't able to break it down and rid their body of the casein by products...those by products may be leaked into their blood or it could just be the fact that it doesn't pass through their systems normally and behavioral issues arise. From what I have read, the opioid act like a drug in their systems.
I swear I have been extremely skeptic about all of this, but I've seen results. Could the changes between Saturday/Sunday be just a coincidence? I'm not sure. I will certainly test the theory again in a few weeks and introduce milk products again to see if we get the same results.
When checking ingredients for milk, look for these items: milk, milk protein, casein, sodium caseinate, calcium caseinate.
So as I stated in a couple of posts, Saturday was super milk infestation day (I think I will now forever refer to the consumption of milk by Boy as an "infestation") and Sunday we paid the price. Yesterday was a no milk day and we had a great day. This morning was a great morning also.
Could it really be that the elimination of milk products (casein specifically) produces such a dramatic affect in behavior?
From what I have read, here are the supposed reasons:
When you consume casein (in milk products), your body breaks it down into by products that some believe are leaked through the intestines and into the blood -- studies show that autistic children are more likely to have gastrointestinal issues including leakage. (We certainly have gastrointestinal issues with boy!) There have been studies done that show that these by products are more commonly found in the urine of autistic children versus non-autistic children. "Casein has been documented to break down to produce the peptide casomorphin, an opioid that appears to act primarily as a histamine releaser." -- wikipedia.
So basically - children consume milk, aren't able to break it down and rid their body of the casein by products...those by products may be leaked into their blood or it could just be the fact that it doesn't pass through their systems normally and behavioral issues arise. From what I have read, the opioid act like a drug in their systems.
I swear I have been extremely skeptic about all of this, but I've seen results. Could the changes between Saturday/Sunday be just a coincidence? I'm not sure. I will certainly test the theory again in a few weeks and introduce milk products again to see if we get the same results.
When checking ingredients for milk, look for these items: milk, milk protein, casein, sodium caseinate, calcium caseinate.
Monday, June 29, 2009
cute pictures of boy - age 2, 3 & 4
"It is easier to build strong children than to repair a broken man." -- Frederick Douglass
Such a sweet boy!!!
Such a sweet boy!!!
boy, bites, & benedryl
- "Learning to live in the present moment is part of the path of joy." -- Sarah Ban Breathnach
I'm glad we didn't freak and do an emergency visit somewhere because there isn't much they could do. Apparently he had an allergic reaction to whatever bit him and it wasn't infected so that was good. The treatment for this is a liquid medicine STRONGER than Benedryl, which to some people may sound like a blessing -- my pediatrician stated that they sometimes use this as a sedative for kids...hmm...not my kid!
Benedryl and Boy do not go together. He has the total opposite reaction to Benedryl, where most kids get tired from it or even can't keep their eyes open....Boy stays up ALL NIGHT LONG. Seriously, all night...
...long...
This happened to us last year or the year before when he happened to need to take some due to a cold that he had. He stayed up around the clock, couldn't sleep. 2am, 3am, 5am rolled around and he was still up. 7am still up...finally at 11am he fell asleep and I nearly did a dance of joy....until 2 hours later he was up again and ready to go for the day.
So, Benedryl is bad, very very bad in our house and now my Pediatrician has prescribed something even STRONGER than Benedryl to help with this weirdo bug allergic reaction thing. However, I must say that so far he is not all hyped up, but it is 10:45 and we are still battling him to fall asleep...
I will let everyone know in the morning...wish me luck please!!
Sunday, June 28, 2009
our week coming up
"People grow through experience if they meet life honestly and courageously. This is how character is built." - Eleanor Roosevelt
Boy got some weird kind of bite at the fireworks party last night and his entire foot/ankle are swollen and red. It doesn't look serious enough for an ER visit (although everytime I look at it I nearly pack him up to go!), but he needs to go in first thing in the morning.
Wednesday is our first official sensory therapy since our evaluation. I need to ask if I get an official report on what his sensory issues are.
I need to contact the Pedi-Gastro doctor to find out if we see him before the appointment we set up for the 6th.
Need to get ready for vacation -- King's Island on the 7th!
Boy got some weird kind of bite at the fireworks party last night and his entire foot/ankle are swollen and red. It doesn't look serious enough for an ER visit (although everytime I look at it I nearly pack him up to go!), but he needs to go in first thing in the morning.
Wednesday is our first official sensory therapy since our evaluation. I need to ask if I get an official report on what his sensory issues are.
I need to contact the Pedi-Gastro doctor to find out if we see him before the appointment we set up for the 6th.
Need to get ready for vacation -- King's Island on the 7th!
got milk?
Yesterday we had several parties to go to and I was unsure how to handle telling the hosts that boy was milk free and couldn't eat the various treats being served. I didn't want to be rude when we aren't even 100% sure it's helping.
So, I let him eat pizza and cookies and cake and more cookies...let him enjoy himself.
Well, we are paying the price today!! He has been bouncing off the walls today and his indecision levels are off the charts.
So, lesson learned? We are back to milk free and will continue to monitor to see if it's making a difference or not.
It's all about trial & error and it really annoys me!
(blogging from my phone)
So, I let him eat pizza and cookies and cake and more cookies...let him enjoy himself.
Well, we are paying the price today!! He has been bouncing off the walls today and his indecision levels are off the charts.
So, lesson learned? We are back to milk free and will continue to monitor to see if it's making a difference or not.
It's all about trial & error and it really annoys me!
(blogging from my phone)
Saturday, June 27, 2009
bowling master
Today we had a bowling birthday party and boy did an awesome job bowling! I am not exactly sure how he did so well considering how he would crinch up his entire body and wouldn't extend his arm to actually throw the ball...but that gave him the magic touch apparently!
He didn't have to bowl "normally" to be good at it...just further proof that "normal" isn't always best!!!
He didn't have to bowl "normally" to be good at it...just further proof that "normal" isn't always best!!!
Friday, June 26, 2009
Thursday, June 25, 2009
amazing discoveries
I learned so much in our one hour sensory evaluation yesterday, that I cannot even begin to put it all into words, but I will try.
First - I am now officially a huge sensory therapy addict! From just my ONE hour evaluation, it had such a huge impact on our life. Nearly everything that we have been troubled over is sensory related and can be helped.
For more sensory related info, join this site: www.sensoryplanet.org - become a member, join some groups, gather info, inform your brain, change your life!
Ok, so first our OT/PT (Sue) asked what areas am I the most concerned about. Wow, most concerned? Of course I have this huge gigantic list of sensory issues that I have discovered just from reading about it, but what am I the most concerned about? I had to keep telling myself "small steps, small steps". So, my most concerning issues would be his noise sensitivity (because it makes it so he can't eat lunch at school) and his handwriting/coloring (because well, just because I don't want him to keep struggling). I think she noticed me fretting over only having to select a few to start so she let me rattle off my entire list and took notes. Here are our key issues:
Sue played a game with boy where he had to use his right hand (writing hand) to pick up dry elbow macaroni, only using his right hand. He had to palm the macaroni and then, still using just his right hand, he had to put each macaroni into a cup one at a time. This was extremely difficult for him and he kept wanting to use his left hand to help. He had no problems picking up the macaroni (using index finger and thumb coordination), but had a huge amount of difficulty using his index finger/thumb to manipulate the noodle from the palm of his hand, to his finger tips and into the cup. This is a game we will now play at home to help strengthen that motor skill.
*Using his hands to eat could be that he likes the feel or it could be lack of control over the utensils.
So, he lacks in the motor skill department, which I anticipated. However, what I did not realize is how the motor skills affect other areas. (I hope I can explain this as well as Sue did!). She took him to a huge play room with various swings hanging from the ceiling, bean bags, jumping ball areas, ladders, slides -- it was the coolest room. She told him that he could play with anything he wanted and she watched him react.
While we played in the sensory room, she rattled off tidbits of information about my other concerns.
His rocking and hair twirling can be many things; balance issues (vestibular), anxiety related or due to under stimulation.
For balance issues (which he doesn't like to be off the ground except while swinging) the auditory and vestibular nerves are close together. Sometimes children who have auditory issues (his noise sensitivity) will try to overcompensate by rocking and moving (vestibular).
For anxiety issues the rocking/hair twirling could be a way to self-regulate himself and calm himself. For most people, when we are anxious we are able to internally talk ourselves down, but for him he may not have that ability so he tries to achieve that by rocking/hair twirling.
For any of these, we must use him as a guide to figure out what he is lacking and change the behavior to one more appropriate.
There is so much more that I could report on and I am sure I will add to this post soon, but I think I will publish now before it becomes too large.
Overall, I am extremely excited for this new adventure. I feel like we are finally moving!!
Appointments are weekly, I will report everything we do at the appointments. Please let me know if anyone has any suggestions!!
First - I am now officially a huge sensory therapy addict! From just my ONE hour evaluation, it had such a huge impact on our life. Nearly everything that we have been troubled over is sensory related and can be helped.
For more sensory related info, join this site: www.sensoryplanet.org - become a member, join some groups, gather info, inform your brain, change your life!
Ok, so first our OT/PT (Sue) asked what areas am I the most concerned about. Wow, most concerned? Of course I have this huge gigantic list of sensory issues that I have discovered just from reading about it, but what am I the most concerned about? I had to keep telling myself "small steps, small steps". So, my most concerning issues would be his noise sensitivity (because it makes it so he can't eat lunch at school) and his handwriting/coloring (because well, just because I don't want him to keep struggling). I think she noticed me fretting over only having to select a few to start so she let me rattle off my entire list and took notes. Here are our key issues:
- noise sensitivity
- handwriting/coloring
- rocking, hair twirling, hand flapping
- chewing
- uses his hands to eat
- feel of things on his skin
Sue played a game with boy where he had to use his right hand (writing hand) to pick up dry elbow macaroni, only using his right hand. He had to palm the macaroni and then, still using just his right hand, he had to put each macaroni into a cup one at a time. This was extremely difficult for him and he kept wanting to use his left hand to help. He had no problems picking up the macaroni (using index finger and thumb coordination), but had a huge amount of difficulty using his index finger/thumb to manipulate the noodle from the palm of his hand, to his finger tips and into the cup. This is a game we will now play at home to help strengthen that motor skill.
*Using his hands to eat could be that he likes the feel or it could be lack of control over the utensils.
So, he lacks in the motor skill department, which I anticipated. However, what I did not realize is how the motor skills affect other areas. (I hope I can explain this as well as Sue did!). She took him to a huge play room with various swings hanging from the ceiling, bean bags, jumping ball areas, ladders, slides -- it was the coolest room. She told him that he could play with anything he wanted and she watched him react.
- He did awesome transitioning to the new room, kudos!
- After she told him he could play anything he wanted, he was super timid.
- He asked "what does this do" pointing to a swing and she would only respond with "I don't know" and he would just stand there.
- Finally, he decided he would try out the swing and stated that it looked like a swing (it was like a huge padded rectangular shape) and he sat on the swing.
- After sitting on it and gently swinging he stood up and walked away from it.
- You get a new toy and you come up with a bunch of ideas on how you can play with it (new blocks - oh I can stack them, I can put them into the bucket, etc etc)
- You execute and try out your ideas (ok I'm stacking the blocks, oh they don't stack well, that's not any fun...)
- You move on to the next idea that you had with the toy (ok so stacking wasn't fun, lets put them in the bucket)
While we played in the sensory room, she rattled off tidbits of information about my other concerns.
His rocking and hair twirling can be many things; balance issues (vestibular), anxiety related or due to under stimulation.
For balance issues (which he doesn't like to be off the ground except while swinging) the auditory and vestibular nerves are close together. Sometimes children who have auditory issues (his noise sensitivity) will try to overcompensate by rocking and moving (vestibular).
For anxiety issues the rocking/hair twirling could be a way to self-regulate himself and calm himself. For most people, when we are anxious we are able to internally talk ourselves down, but for him he may not have that ability so he tries to achieve that by rocking/hair twirling.
For any of these, we must use him as a guide to figure out what he is lacking and change the behavior to one more appropriate.
There is so much more that I could report on and I am sure I will add to this post soon, but I think I will publish now before it becomes too large.
Overall, I am extremely excited for this new adventure. I feel like we are finally moving!!
Appointments are weekly, I will report everything we do at the appointments. Please let me know if anyone has any suggestions!!
Tuesday, June 23, 2009
still milk free
We are still doing the milk free diet while we await results of the latest blood workup being done. We believe we have noticed significant behavior changes in boy now that he is milk free, although we have had almost one mess up each day!
We aren't even starting the gluten until after all of these tests are done for boy. If we are on the gluten free diet when he has an endoscopy then those results will be inconclusive too!
A lot of inconclusiveness going on...I think it is just a ploy to keep getting my $30 copay...
Speaking of which, has anyone watched the Michael Moore documentary on health care? I am sure that it is not 100% accurate, BUT it is convincing!!!
We aren't even starting the gluten until after all of these tests are done for boy. If we are on the gluten free diet when he has an endoscopy then those results will be inconclusive too!
A lot of inconclusiveness going on...I think it is just a ploy to keep getting my $30 copay...
Speaking of which, has anyone watched the Michael Moore documentary on health care? I am sure that it is not 100% accurate, BUT it is convincing!!!
inconclusive
blah, inconclusive data on our blood test for celiac disease. The gastro doctor ordered more blood work before he will diagnose...I hate waiting! Results should be in on Friday.
More to come!
(bloggery from phone)
More to come!
(bloggery from phone)
Monday, June 22, 2009
sensory evaluation!
On another note, I completely forgot! We have our sensory evaluation on Wednesday. Can't wait!!
Everything is falling into place. I feel like we are finally get answers and are cutting through the red tape.
Go team!
Everything is falling into place. I feel like we are finally get answers and are cutting through the red tape.
Go team!
always good to know someone...
We got lucky! We were able to get an appointment tomorrow at 9:15am with the gastro doctor! I am so thankful to get an appointment so quickly to eliminate that crazy window of worry!
I will blog everything that we learn...I need to make a list of questions...
I will blog everything that we learn...I need to make a list of questions...
- What can he eat?
- What can't he eat?
- How long before his small intestines heal?
- Are there any enzymes he can take that will help digest the gluten if he does happen to eat it?
- Can he have milk?
blood work up - update
Boy tested positive for celiac disease. I just KNEW something different was going on with him. I haven't seen the doctor officially yet, but my guess is we will be treating this with a gluten free/milk free diet.
Initial thoughts: how will we survive this? I know we will, you always do whatever is necessary for your children...but how? I give huge amounts of credit to people who are doing this already for themselves or their children!
Next steps: we are going to meet with a gastro doctor and our own pediatrician to discuss.
This explains so much, so in one way the news is horrifying and in another it is a relief to just have the information so we can move forward. Moving forward with a diagnosis feels like you are accomplishing more than just eliminating and seeing what happens...I'm so not scientific enough for the "eliminate and see what happens"!
I will keep everyone posted and if there is anyone out there with recipes...I would much appreciate them :)
Initial thoughts: how will we survive this? I know we will, you always do whatever is necessary for your children...but how? I give huge amounts of credit to people who are doing this already for themselves or their children!
Next steps: we are going to meet with a gastro doctor and our own pediatrician to discuss.
This explains so much, so in one way the news is horrifying and in another it is a relief to just have the information so we can move forward. Moving forward with a diagnosis feels like you are accomplishing more than just eliminating and seeing what happens...I'm so not scientific enough for the "eliminate and see what happens"!
I will keep everyone posted and if there is anyone out there with recipes...I would much appreciate them :)
Sunday, June 21, 2009
out & about 4 autism walk
Saturday we went on the "out & about 4 autism" walk for the Macomb/St. Clair County of the ASA.
It was a one mile "fun walk", which boy thought would last FOREVER! In between complaining he enlightened everyone on everything there is to know about Star Wars. Everyone was thoroughly entertained.
It was really nice and a beautiful day...aside from the birds, boy is afraid of birds! Who would think there would be birds on the beach :)
It was a one mile "fun walk", which boy thought would last FOREVER! In between complaining he enlightened everyone on everything there is to know about Star Wars. Everyone was thoroughly entertained.
It was really nice and a beautiful day...aside from the birds, boy is afraid of birds! Who would think there would be birds on the beach :)
Wednesday, June 17, 2009
milk free products
Here are some of our favorite milk free products so far...he is eating a lot of cereal with soy milk, toasted pb&j and little pizzas!
Tuesday, June 16, 2009
walk for autism
Out and about 4 autism walk/run is this Saturday June 20th.
Come on out and walk or run for a good cause! Boy and I will be there (walking)
:)
http://www.macombasa.org/documents/walk4.pdf
Come on out and walk or run for a good cause! Boy and I will be there (walking)
:)
http://www.macombasa.org/documents/walk4.pdf
milk is taking over the world!
I cannot believe how difficult it is to find milk free products! We are surviving...cannot believe I thought the milk free would be the easiest to do!
My pediatrician ordered a whole panel of blood tests for my son, including a celiac disease test. We should get those results soon, but reading the symptoms of celiac disease he only has two of the symptoms - bathroom issues and irritability.
Boy is doing very well with the diet though. I am so proud of him. Before he eats anything, he will ask "does it have milk?"
He really enjoys the soy milk in his cereal...I still won't try it! Tonight I made him milk free pizza using soy cheese...he ate the whole thing. WOOT!
At the same time I am battling the fact that he lost 3lbs since March, which may not seem like a big deal except that he looked skeletal to begin with in March. He is 100th % for height and 90% for weight, the doctor says he is fine, but is concerned that he did lose weight (I think it was because of noise issues in the lunchroom during school, he would not eat). So, I am goal oriented to fatten him up a little this summer!!
I will try to document some of the milk free foods that we have found that he will eat -- he is a SUPER picky eater, so if he will eat something, then anyone would eat it!
Thanks for your comments on my last post! It is nice to see that people are following and have been struggling with the same issues. We are not alone!
My pediatrician ordered a whole panel of blood tests for my son, including a celiac disease test. We should get those results soon, but reading the symptoms of celiac disease he only has two of the symptoms - bathroom issues and irritability.
Boy is doing very well with the diet though. I am so proud of him. Before he eats anything, he will ask "does it have milk?"
He really enjoys the soy milk in his cereal...I still won't try it! Tonight I made him milk free pizza using soy cheese...he ate the whole thing. WOOT!
At the same time I am battling the fact that he lost 3lbs since March, which may not seem like a big deal except that he looked skeletal to begin with in March. He is 100th % for height and 90% for weight, the doctor says he is fine, but is concerned that he did lose weight (I think it was because of noise issues in the lunchroom during school, he would not eat). So, I am goal oriented to fatten him up a little this summer!!
I will try to document some of the milk free foods that we have found that he will eat -- he is a SUPER picky eater, so if he will eat something, then anyone would eat it!
Thanks for your comments on my last post! It is nice to see that people are following and have been struggling with the same issues. We are not alone!
Thursday, June 11, 2009
we have survived!
We survived the first day on the casein free diet! He even ate cereal with plain soy milk...it didn't smell too good!
Good job!
I explained to him why he had to eat differently than the girls and he was ok with it.
Good job!
I explained to him why he had to eat differently than the girls and he was ok with it.
summer social skills program - group
Summer social skills group classes @ the Judson Center in Clinton Township, MI
http://judsoncenter.org/template.php?pid=151
http://judsoncenter.org/template.php?pid=151
- Elementary Social Skills
A structured 5-week program for children who have conversational language skills.The group will focus on making and keeping friends, communicating through body language and emotional development.
casein free breakfast
So here we go, day one of the casein free diet. Boy was I ill-prepared! Note to self, buy soy milk and pray boy likes it.
I pulled out the Eggo waffles from the freezer, clearly states "contains milk". Hmm, ok put that back. I'm working from home today so homemade waffles will probably take too long to make.
Riffle through the cupboards. Ok, how about peanut butter toast. Peanut butter ingredients look good...
My white bread has no milk, whey, casein, caseinate, sodium caseinate..good so far, but it does contain HFCS. Ugh.
My wheat bread has no HFCS, but contains whey, milk...Oy!
This is going to be interesting.
I pulled out the Eggo waffles from the freezer, clearly states "contains milk". Hmm, ok put that back. I'm working from home today so homemade waffles will probably take too long to make.
Riffle through the cupboards. Ok, how about peanut butter toast. Peanut butter ingredients look good...
My white bread has no milk, whey, casein, caseinate, sodium caseinate..good so far, but it does contain HFCS. Ugh.
My wheat bread has no HFCS, but contains whey, milk...Oy!
This is going to be interesting.
yesterday
Today I feel completely drained. I prayed all night for a better day today. Yesterday was a horrible day.
Yesterday, aside from the fact that boy was completely out of sorts and not at all himself, we had 4 serious meltdowns. For anyone who has not witnessed a meltdown, you may not fully be able to understand the horribleness of the meltdown. Every kid has meltdowns to varying degrees. My 5 year old will have a meltdown that will consist of her yelling something mean "You Meanie!", crying a bit and then sitting on the couch sucking her thumb for 5 minutes before she has self-regulated her feelings and can move on. My 2 year old will stomp up and down until you divert her attention, which allows her to self-regulate her feelings and can move on.
With my son a meltdown is all consuming, terrifying, loud, uncontrollable, unpredictable, and lasts for HOURS. He may calm after one meltdown, but the stage has been set that he can easily be set off again. That seemed to be the case yesterday. We have a "soothing box" for him to use in his room to help self-regulate his feelings, but yesterday he was completely non-present during them. That's another thing that happens sometimes in a meltdown, he shuts down internally and I swear even his eyes glaze over. He turns into this empty shell of a person. In those instances I put him in the shower and the water seems to help calm him. Then he comes out exactly the little boy that I know and everything is right with the world again.
Yesterday was a very difficult day, we did a lot of difficult things (allergy testing, teeth pulling). And we are on summer vacation as of last Friday, so we are lacking the routine of school and are trying to adjust to the routine of summer...
On a side note, our routine charts for morning and bedtime worked great the first couple of days, but now the novelty has worn off and he hasn't yet established the routine charts as a rule to his day so he's less ambitious to do them and even less ambitious to get ready for morning and bedtime! Any suggestions on how to make the routine charts really work?
Today will be a better day. Today will be a better day. Today will be a better day.
Today will be a casein free day...which will probably make the entire day very weird! :)
Yesterday, aside from the fact that boy was completely out of sorts and not at all himself, we had 4 serious meltdowns. For anyone who has not witnessed a meltdown, you may not fully be able to understand the horribleness of the meltdown. Every kid has meltdowns to varying degrees. My 5 year old will have a meltdown that will consist of her yelling something mean "You Meanie!", crying a bit and then sitting on the couch sucking her thumb for 5 minutes before she has self-regulated her feelings and can move on. My 2 year old will stomp up and down until you divert her attention, which allows her to self-regulate her feelings and can move on.
With my son a meltdown is all consuming, terrifying, loud, uncontrollable, unpredictable, and lasts for HOURS. He may calm after one meltdown, but the stage has been set that he can easily be set off again. That seemed to be the case yesterday. We have a "soothing box" for him to use in his room to help self-regulate his feelings, but yesterday he was completely non-present during them. That's another thing that happens sometimes in a meltdown, he shuts down internally and I swear even his eyes glaze over. He turns into this empty shell of a person. In those instances I put him in the shower and the water seems to help calm him. Then he comes out exactly the little boy that I know and everything is right with the world again.
Yesterday was a very difficult day, we did a lot of difficult things (allergy testing, teeth pulling). And we are on summer vacation as of last Friday, so we are lacking the routine of school and are trying to adjust to the routine of summer...
On a side note, our routine charts for morning and bedtime worked great the first couple of days, but now the novelty has worn off and he hasn't yet established the routine charts as a rule to his day so he's less ambitious to do them and even less ambitious to get ready for morning and bedtime! Any suggestions on how to make the routine charts really work?
Today will be a better day. Today will be a better day. Today will be a better day.
Today will be a casein free day...which will probably make the entire day very weird! :)
Wednesday, June 10, 2009
diet
Today boy had food allergy testing done. I was hoping to do the food allergy test and see if he was allergic to gluten, casein, wheat and then I could just eliminate that substance from his diet...I hate trial and error! Unfortunately, just because he had negative results on the food allergy testing, it does not mean that gluten, casein, wheat will not have an affect on him. The doctor stated that he could have an intolerance to those subjects.
So.
The doctor suggests that we eliminate one at a time for a month and then reintroduce to see if the symptoms return with the reintro. He suggested we start with casein as it is the easiest to eliminate.
So.
Tomorrow we start casein free diet. No cereal (unless soy milk), no yogurt, no cheese, no icecream...things should be interesting.
I'll keep you posted!
So.
The doctor suggests that we eliminate one at a time for a month and then reintroduce to see if the symptoms return with the reintro. He suggested we start with casein as it is the easiest to eliminate.
So.
Tomorrow we start casein free diet. No cereal (unless soy milk), no yogurt, no cheese, no icecream...things should be interesting.
I'll keep you posted!
Monday, June 1, 2009
routine charts
This morning was our first use of the "Good Morning Chart" and let me tell you, it worked miracles. This was only our first day of use so maybe it was just the novelty of the whole thing, but I'm feeling more optimistic than that!
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