blah, inconclusive data on our blood test for celiac disease. The gastro doctor ordered more blood work before he will diagnose...I hate waiting! Results should be in on Friday.
More to come!
(bloggery from phone)
Tuesday, June 23, 2009
Monday, June 22, 2009
sensory evaluation!
On another note, I completely forgot! We have our sensory evaluation on Wednesday. Can't wait!!
Everything is falling into place. I feel like we are finally get answers and are cutting through the red tape.
Go team!
Everything is falling into place. I feel like we are finally get answers and are cutting through the red tape.
Go team!
always good to know someone...
We got lucky! We were able to get an appointment tomorrow at 9:15am with the gastro doctor! I am so thankful to get an appointment so quickly to eliminate that crazy window of worry!
I will blog everything that we learn...I need to make a list of questions...
I will blog everything that we learn...I need to make a list of questions...
- What can he eat?
- What can't he eat?
- How long before his small intestines heal?
- Are there any enzymes he can take that will help digest the gluten if he does happen to eat it?
- Can he have milk?
blood work up - update
Boy tested positive for celiac disease. I just KNEW something different was going on with him. I haven't seen the doctor officially yet, but my guess is we will be treating this with a gluten free/milk free diet.
Initial thoughts: how will we survive this? I know we will, you always do whatever is necessary for your children...but how? I give huge amounts of credit to people who are doing this already for themselves or their children!
Next steps: we are going to meet with a gastro doctor and our own pediatrician to discuss.
This explains so much, so in one way the news is horrifying and in another it is a relief to just have the information so we can move forward. Moving forward with a diagnosis feels like you are accomplishing more than just eliminating and seeing what happens...I'm so not scientific enough for the "eliminate and see what happens"!
I will keep everyone posted and if there is anyone out there with recipes...I would much appreciate them :)
Initial thoughts: how will we survive this? I know we will, you always do whatever is necessary for your children...but how? I give huge amounts of credit to people who are doing this already for themselves or their children!
Next steps: we are going to meet with a gastro doctor and our own pediatrician to discuss.
This explains so much, so in one way the news is horrifying and in another it is a relief to just have the information so we can move forward. Moving forward with a diagnosis feels like you are accomplishing more than just eliminating and seeing what happens...I'm so not scientific enough for the "eliminate and see what happens"!
I will keep everyone posted and if there is anyone out there with recipes...I would much appreciate them :)
Sunday, June 21, 2009
out & about 4 autism walk
Saturday we went on the "out & about 4 autism" walk for the Macomb/St. Clair County of the ASA.
It was a one mile "fun walk", which boy thought would last FOREVER! In between complaining he enlightened everyone on everything there is to know about Star Wars. Everyone was thoroughly entertained.
It was really nice and a beautiful day...aside from the birds, boy is afraid of birds! Who would think there would be birds on the beach :)
It was a one mile "fun walk", which boy thought would last FOREVER! In between complaining he enlightened everyone on everything there is to know about Star Wars. Everyone was thoroughly entertained.
It was really nice and a beautiful day...aside from the birds, boy is afraid of birds! Who would think there would be birds on the beach :)
Wednesday, June 17, 2009
milk free products
Here are some of our favorite milk free products so far...he is eating a lot of cereal with soy milk, toasted pb&j and little pizzas!
Tuesday, June 16, 2009
walk for autism
Out and about 4 autism walk/run is this Saturday June 20th.
Come on out and walk or run for a good cause! Boy and I will be there (walking)
:)
http://www.macombasa.org/documents/walk4.pdf
Come on out and walk or run for a good cause! Boy and I will be there (walking)
:)
http://www.macombasa.org/documents/walk4.pdf
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