Wednesday, June 17, 2009

milk free products



Here are some of our favorite milk free products so far...he is eating a lot of cereal with soy milk, toasted pb&j and little pizzas!


Tuesday, June 16, 2009

walk for autism

Out and about 4 autism walk/run is this Saturday June 20th.

Come on out and walk or run for a good cause! Boy and I will be there (walking)

:)

http://www.macombasa.org/documents/walk4.pdf

milk is taking over the world!

I cannot believe how difficult it is to find milk free products! We are surviving...cannot believe I thought the milk free would be the easiest to do!

My pediatrician ordered a whole panel of blood tests for my son, including a celiac disease test. We should get those results soon, but reading the symptoms of celiac disease he only has two of the symptoms - bathroom issues and irritability.

Boy is doing very well with the diet though. I am so proud of him. Before he eats anything, he will ask "does it have milk?"

He really enjoys the soy milk in his cereal...I still won't try it! Tonight I made him milk free pizza using soy cheese...he ate the whole thing. WOOT!

At the same time I am battling the fact that he lost 3lbs since March, which may not seem like a big deal except that he looked skeletal to begin with in March. He is 100th % for height and 90% for weight, the doctor says he is fine, but is concerned that he did lose weight (I think it was because of noise issues in the lunchroom during school, he would not eat). So, I am goal oriented to fatten him up a little this summer!!

I will try to document some of the milk free foods that we have found that he will eat -- he is a SUPER picky eater, so if he will eat something, then anyone would eat it!

Thanks for your comments on my last post! It is nice to see that people are following and have been struggling with the same issues. We are not alone!



Thursday, June 11, 2009

we have survived!

We survived the first day on the casein free diet! He even ate cereal with plain soy milk...it didn't smell too good!

Good job!

I explained to him why he had to eat differently than the girls and he was ok with it.

summer social skills program - group

Summer social skills group classes @ the Judson Center in Clinton Township, MI
http://judsoncenter.org/template.php?pid=151
  • Elementary Social Skills
(boys & girls ages 5 - 12)
A structured 5-week program for children who have conversational language skills.
The group will focus on making and keeping friends, communicating through body language and emotional development.
  • Session I
    • Monday's, June 29 - July 27, 5:00 pm - 6:00 pm
    • Thursday's, June 25 - July 23, 6:30 pm - 7:30 pm
  • Session II
    • Monday's, August 3 - August 31, 5:00 pm - 6:00 pm
    • Thursday's, July 30 - August 27, 6:30 pm - 7:30 pm
Cost: $125 per session.

casein free breakfast

So here we go, day one of the casein free diet. Boy was I ill-prepared! Note to self, buy soy milk and pray boy likes it.

I pulled out the Eggo waffles from the freezer, clearly states "contains milk". Hmm, ok put that back. I'm working from home today so homemade waffles will probably take too long to make.

Riffle through the cupboards. Ok, how about peanut butter toast. Peanut butter ingredients look good...

My white bread has no milk, whey, casein, caseinate, sodium caseinate..good so far, but it does contain HFCS. Ugh.

My wheat bread has no HFCS, but contains whey, milk...Oy!

This is going to be interesting.

yesterday

Today I feel completely drained. I prayed all night for a better day today. Yesterday was a horrible day.

Yesterday, aside from the fact that boy was completely out of sorts and not at all himself, we had 4 serious meltdowns. For anyone who has not witnessed a meltdown, you may not fully be able to understand the horribleness of the meltdown. Every kid has meltdowns to varying degrees. My 5 year old will have a meltdown that will consist of her yelling something mean "You Meanie!", crying a bit and then sitting on the couch sucking her thumb for 5 minutes before she has self-regulated her feelings and can move on. My 2 year old will stomp up and down until you divert her attention, which allows her to self-regulate her feelings and can move on.

With my son a meltdown is all consuming, terrifying, loud, uncontrollable, unpredictable, and lasts for HOURS. He may calm after one meltdown, but the stage has been set that he can easily be set off again. That seemed to be the case yesterday. We have a "soothing box" for him to use in his room to help self-regulate his feelings, but yesterday he was completely non-present during them. That's another thing that happens sometimes in a meltdown, he shuts down internally and I swear even his eyes glaze over. He turns into this empty shell of a person. In those instances I put him in the shower and the water seems to help calm him. Then he comes out exactly the little boy that I know and everything is right with the world again.

Yesterday was a very difficult day, we did a lot of difficult things (allergy testing, teeth pulling). And we are on summer vacation as of last Friday, so we are lacking the routine of school and are trying to adjust to the routine of summer...

On a side note, our routine charts for morning and bedtime worked great the first couple of days, but now the novelty has worn off and he hasn't yet established the routine charts as a rule to his day so he's less ambitious to do them and even less ambitious to get ready for morning and bedtime! Any suggestions on how to make the routine charts really work?

Today will be a better day. Today will be a better day. Today will be a better day.

Today will be a casein free day...which will probably make the entire day very weird! :)